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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Diamox dosing set schedule or prn?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Diamox dosing set schedule or prn? › Reply To: Diamox dosing set schedule or prn?

August 21, 2015 at 4:45 pm #5625
KateH
Participant

Thank you for your help. We were confused by this paragraph in the Driscoll Theory book:

“Patients should NOT be instructed to take Diamox a few days a week (and go off of it for a
few days per week). This invites reperfusion injury and subjects the patient to swings of CSF
pressure that undermine attempts to establish a CSF equilibrium. Additionally, the effect of
Diamox is reduced and its side-effects are increased. After experiencing relief from
high ICP, patients usually know when they are able to reduce or discontinue Diamox usage
(without suffering from these additional risks).”

It makes it sound like you take it PRN or less frequent schedule after ICP has been reduced. So my doctor was unsure if I was supposed to take this long term on a strict 3 times a day schedule, or PRN/less often after acute ICP has been reduced.

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