NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Hi again! I have an update, and some questions. › Reply To: Hi again! I have an update, and some questions.
I’ve been weighing the pros and cons of trying the Plaquenil. I got the prescription and the order for my eye exam in the mail the other day, and I just haven’t decided yet. I need to read more about it.
My last eye exam (a couple months back) had him telling me that my tear film evaporates faster than normal, my sclera doesn’t look especially thin, and that we need to keep tabs on my optic nerve because he sees some early signs of glaucoma (runs in the family, too). I already have astigmatism, and I already get diploplia – which I had no idea was a thing until I started talking to EDSers. I’ve also seen floaters since my teens, what I described as “being able to watch atoms dancing in the air around me”.
I’m now fairly convinced that the soft cervical collar didn’t cause my terrible reaction, but that I have an allergy to ranitidine. My CSF nose leak is coming back, and I know the headaches are soon to follow. I’m going to try the collar again tonight, and I stopped taking the zantac after I tried another one about a week after my “episode”, and had similar, but less severe, symptoms.
I also have a slight reaction to calcium supplements (like Tums), so now I just take an Immodium every day with my other lovely daily doses.
Aside from the plaquenil concerns, my main issue has been my sciatic nerve, on my left side. On and off for 4 years (since a car accident), and as of right now constant for the last 4 months. My MRI is in a couple weeks. Fingers crossed for me, please! My back s’port brace has been a huge help in my daily activities, but I’m fighting not to use it too much and potentially cause more damage/weaken the surrounding muscles and cause myself more pain.
I’m leaning toward giving the plaquenil a shot, just to see. What’s to lose, really? If I try it for a couple months and get no more relief than ibuprofen gives me (which is squat, basically), then I stop taking it. And if it helps, it helps, y’know?
I’m really wishing right now that I’d followed through with medical school. I’d be at the point of picking my area of study right now, and I would love to be part of the research into Ehler’s-Danlos and similar conditions. I wanted to be a cognitive neuroscientist, but life..gets in the way, sometimes. Ah well, one bite at a time!
I’ll keep updating as things progress. Keep on keeping on, everyone!