• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: When to consider CCSVI?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › When to consider CCSVI? › Reply To: When to consider CCSVI?

February 22, 2012 at 12:10 am #1762
SammyJo
Participant

I’m not a ccsvi expert, but I’ve had the treatment 4 times, so I know where you can get it done. It will probably involve travel, if you want to go to one of the doctors with experience. If you must go with a local interventional radiologist, look for one who has specialized in treating diabetics, specifically central vein stenosis, diabetics also get stenosis in places like the jugulars.

If you want to get a Zamboni style doppler before going in for a procedure, you can check with http://ccsvi.azdoppler.com/ and see if they are travelling to a city near you, or go to AZ.

Lastly, if you can travel, you could go to the Hubbard Foundation in San Diego, and there you can get very good CCSVI MRI. The have several associated IRs. Dr Haacke also has an MRI facility in Las Vegas, and works with IRs.

My last 2 treatments were with Dr McGuckin, he has done 500 procedures now, and has extensive experience treating diabetics. He is quite the master at treating veins, has very good results. His CCSVI program specialist has an educational blog, http://thinkccsvi.com with a map of clinics around the country he travels to, and tons of info on CCSVI. You can talk to the intake nurse. Get their instructions first on referrals if needed, and they will handle the insurance part.

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020