Hi there everybody, new to the forum. I am 49 now and have been dealing with bazaar symptoms for almost 5 yrs. In 2009, I was in a minor car accident, simple whip lash and from that day on, my life changed drastically! I developed or should I say, was predisposed to a condition called Arterial Thoracic Outlet Syndrome. It’s after that, I had to begin this long journey (by myself) Dr’s with any knowledge of my conditions were very hard to find! In the last year, I have been diagnosed with EDS, hypermobility type, Autonomic Dysfunction, Chari Malformation, Myofascial Pain syndrome, and god knows what’s next. I came across Dr Diana’s website and just started to cry. I have so many strange symptoms, the worst being these spells for the lack of a better word, that come on daily as soon as I sit down. The left side of my tongue goes numb and then it feels as if it goes into my throat and travels on up to my occipital nerve affecting my vision and eyesight. Tinnitus with drainage, my nose drips like a facet when I bend forward. If I turn my head to the left for to long, these spells just get worse. I can’t sit at the computer without these spells or go into a Dr’s office or any store with fluorescent lighting, I spell. Dr Diana, I’m really starting to wonder if CCSVI in the Fundus (?) spelling and External Communicating Hydrocephalus can play a factor. Any input, would be highly appreciated!!
Thanks for listening and feedback would be awesome….:-)