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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: crazy pain I don't know how to explain

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › crazy pain I don't know how to explain › Reply To: crazy pain I don't know how to explain

March 11, 2015 at 11:12 am #5362
Barbara
Participant

Hi Echo,
Reading your post reminded me of the weird pains I had in my foot, at one time. I think it was to do with a malfunctioning autonomic system.

To describe it, my right leg started misbehaving way back in 2004, it hurt a lot, was weak and when I stood, it felt like standing on shards of broken glass under the ‘instep’. I could manage to walk, in a fashion, on the outer edge of my foot, with the aid of a stick to help support and balance me but only for short distances, as the general leg pain would soon come on. Also, when I walked, if my big toe on that foot made contact with the floor, it would trigger irregular heartbeats – weird or what?!! – but happened every time.

Upon testing, with the needles they insert into your muscle (among other tests) they determined I had Small-fibre Neuropathy and also a mild right leg Radiculopathy. I determined my own method of treatment – the ‘use it or lose it’ method! Thank goodness that it’s all back to near normal now.

Before I suffered my head and neck injury, I would never have believed there were so many different types of pain – the descriptions could fill a book! I’d had the odd toothache, or sprain, some tummy issues and the pains of childbirth but NOTHING compared to all this.

I think that’s part of the trouble, non-sufferers just cannot comprehend it. Lets face it, the ‘pain-screening methods’ have been designed by non-sufferers, a bit like the ‘manual muscle-measurement methods’, which are again totally inadequate to assess and capture the level of functionality, in most of us suffering muscle issues.

In case it’s a deficiency, have you tried Magnesium baths (or Sea Salt baths, or indeed Bicarb and Vit C baths – basically found in ‘bath bombs’) ?
Regards
Barbara
(UK)

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