So i managed to get my GP to prescribe me Diamox for a 2 week trial, however I am not sure that it is helping me as the results have been a little inconsistent. 🙁
Day 1/2 : I felt loads better, no pain upon waking and my headache was significantly reduced (in fact barely there) throughout the day. One thing that i really noticed was that I wasn’t experiencing pain when bending in the shower and my ‘headrush/headache increase’ when moving/standing had decreased.
Day 3: Headache was still minimal but i experienced a few(3 or 4) sharp stabbing pains to my temples throughout the day.
Day 4: Then when on the train i experienced head pain as usual. Still photophobic, nauseated and had temple and base of skull twinges. Saw my Osteopath and he found my rib cage to be twisted and my pelvis had a lot of pressure on it.
Day 5: No pain until 15:00 (great!) then slight nausea, left shoulder pain but no pain increase on jolty train. Numbness in finger and toes and I couldn’t get rid of it for 3-4 mins (new symptom, could it be the diamox?)
Day 6 : N/A – forgot to take pills eve of day 5.
Day 7: Felt really rough. Bad head pain all day, normal symptoms: worse for moving, photophobic, phonophobic, nauseated, pain (took additional pain killers)
Day 8: Slightly better than day 7 but sill experienced ‘normal headache’ symptoms,including aching shoulder .
Day 9: Slightly better than day 8 but sill experienced ‘normal headache’ symptoms, including aching shoulder.
I feel that this is a very mixed conclusion. Is this slow and inconsistent reaction to Diamox normal, i’m not sure it is. I don’t really know what to make of it. Do I ask my Doctor to give me another week or two to continue trying the Diamox or is my problem different to all of you and am I back to square one again (I do hope not).
I also have another appointment with my Neurologist on Monday. Brian, did you find any useful handouts/ research to present to your doctor that I might be able to use too?