• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: New to the forum :)

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › New to the forum :) › Reply To: New to the forum :)

January 10, 2014 at 9:46 am #4720
EDSMOM+4
Participant

Hi,
I am new to this site as well. I am 44 and was diagnosed with EDS in my 30s, which was cause to have all four of my children evaluated. Long story short, 2 of the four were definitely a yes, one was borderline, while the oldest showed no signs, but based on early history, it was thought she may have it too. She was and still is a competitive swimmer, which may have helped improve her loose joints. Sadly, when our geneticist left, I didn’t follow up with a new doctor and now deeply regret it as my youngest, age 12, is now having a lot of issues and is in bed instead of school as I type. I can’t get in with a new doctor until June, but some tests have been ordered. All of the above about her are true, along with many other things(PVCs,blood pressure issues,high carbon dioxide at night with no apnea or shallow breathing, food intolerance to name just a few.) Her MRI was actually ordered by her pulmonary doctor(she has had severe asthma as well since she was a toddler) and she admits she is not sure if a finding is significant. Here is the finding that confuses me. I will add, no signs of Chiari were found.

A few tiny punctate foci of T2/FLAIR signal abnormality are noted in the juxtacortical and deep
white matter of the right frontal lobe and in the periventricular white matter adjacent to the atria
of the left lateral ventricle, a nonspecific finding. The brain parenchymal signal is otherwise
normal. There is no associated magnetic susceptibility to suggest prior hemorrhage or axonal injury.

She is having a chart review Wednesday and I would like to be prepared. Do you know if this could be related to EDS in any manner?

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020