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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: crazy pain I don't know how to explain

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › crazy pain I don't know how to explain › Reply To: crazy pain I don't know how to explain

March 10, 2015 at 10:41 am #5354
Dr. Diana
Keymaster

Hi Echo and Mog the Dog, Like many of us, I also had weird pain that defied explanation (and traditional pain relief). It was a secondary response to infection and this is not something that doctors recognize as today. Sadly, pain specialists only have so much in their arsenal to give us and for me, NOTHING worked. I do think that we need new vocabulary to explain some of these weird pain symptoms, as you suggested Echo. My pain was not neuropathic, not in the muscle or the bone, and it seemed to travel around… really weird, right? I’m working with some doctors now to encourage them to think creatively 😉 — I believe it’s essential for us all. Although I’m not giving you answers, sometimes it helps to know you are not alone, and many of us are trying to gut out these weird symptoms. We are all here for you! 🙂

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