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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: crazy pain I don't know how to explain

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › crazy pain I don't know how to explain › Reply To: crazy pain I don't know how to explain

March 10, 2015 at 8:41 am #5353
Mog the Dog
Participant

Hi Echo,

Sorry to hear that you are experiencing this new sort of pain. Sounds more like neuropathic than musculoskeletal pain to me based on your description, but a pain specialist would be the one to know for sure.

If the doctors you are currently seeing won’t take you seriously then it is time to find a new doctor. I know, easier said than done sometimes, but it is important that you avoid being harmed more than helped when you visit a doctor.

There are some recent scholarly articles available online that address the incidence of neuropathic pain in EDS that might be helpful in your quest for answers.

MTD

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