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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Headache advice

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Headache advice › Reply To: Headache advice

April 8, 2014 at 10:16 pm #4968
grumpy
Participant

I am also in the UK and finding impossible to get help for myself and daughter. We all need a written page we can point our doctors to.
I am aware we are all ill and struggling but we can’t get help without information for our doctors. The videos are fine in themselves but they mention attached papers that aren’t there anymore.
I have recently had head and neck MRIs, the neck one has obvious problems but the head of course shows no obvious reason for my symptoms….I have an appointment with the neurologist on 28th April and I need the information now so I can get him to look at the right things and to take the right decisions about treatment.

I am fantastically grateful that this mess of symptoms has been tied together by Dr Diana, would love to be in the US and have a way to take part in trials, to physically help and would love to purchase the information I need. Life is falling apart for us both and I need information now.

Sorry about my “tone” it’s not meant to be critical in any way but at 4AM awake with splitting head it’s hard to get the nuances right.

Thanks.

Brian

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This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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