I am also in the UK and finding impossible to get help for myself and daughter. We all need a written page we can point our doctors to.
I am aware we are all ill and struggling but we can’t get help without information for our doctors. The videos are fine in themselves but they mention attached papers that aren’t there anymore.
I have recently had head and neck MRIs, the neck one has obvious problems but the head of course shows no obvious reason for my symptoms….I have an appointment with the neurologist on 28th April and I need the information now so I can get him to look at the right things and to take the right decisions about treatment.
I am fantastically grateful that this mess of symptoms has been tied together by Dr Diana, would love to be in the US and have a way to take part in trials, to physically help and would love to purchase the information I need. Life is falling apart for us both and I need information now.
Sorry about my “tone” it’s not meant to be critical in any way but at 4AM awake with splitting head it’s hard to get the nuances right.