A few tiny punctate foci of T2/FLAIR signal abnormality are noted in the juxtacortical and deep
white matter of the right frontal lobe and in the periventricular white matter adjacent to the atria of the left lateral ventricle, a nonspecific finding. The brain parenchymal signal is otherwise normal. There is no associated magnetic susceptibility to suggest prior hemorrhage or axonal injury.
She is having a chart review Wednesday and I would like to be prepared. Do you know if this could be related to EDS in any manner?
Welcome, EDSMOM+4! 😉 I’m no radiologist, but I just saw a patient in our latest study who had a similar finding… I could be WAY off, but if you want to kick around some ideas with your doctor, I’d be tempted to ask: Do these look like ‘Dawson’s Fingers’? Can we check my daughter’s Vitamin B12 level with 4 blood tests: serum B12, serum homocysteine, MMA, and Holo-TC? (low B12 can sometimes look like demyelination) And finally (and least likely), can you rule out small stroke, small vessel disease? Has your daughter tried Zantac/Zyrtec, BTW? Does she have any symptoms of high intracranial pressure? Hang in, don’t panic, but please keep us posted! And please remember, this is a marathon, not a sprint — so please take a deep breath now and then! Big hug…