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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Headache advice

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Headache advice › Reply To: Headache advice

March 30, 2014 at 6:52 pm #4956
Barbara
Participant

Hi again,
Becky from ChiariConnectionInternational (yahoo group) says:
“My daughter has a small Chiari 4mm. But according to Dr. Frim has brainstem compression. So if I understood him correctly flow doesn’t matter if you have pressure on your brainstem.”

So, as I understand it, you can also have what looks like normal CSF flow but, still experience symptoms, due to the rogue cerebellar tonsil pressing against the brainstem.
Barbara
(UK)

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