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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Does anyone's crown flatten when they are upright?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Does anyone's crown flatten when they are upright? › Reply To: Does anyone's crown flatten when they are upright?

August 27, 2016 at 8:01 pm #6003
Barbara
Participant

My Neurologist is perplexed himself and not sure how to help me, although he is trying to find out what’s going on. My blood pressure rises dramatically when I stand up and I feel that my breathing is laboured when I’m moving but improves if I’m completely still. I have neck and shoulder pain, and a feeling of pressure on the top of my head. . . . . . . . All these symptoms started after a minor head injury

I have also suffered these things above after a head and neck injury. After 5 years of suffering, I got rid of the neck and shoulder pain (and top of the head pain) by wearing a Philadelphia collar (and body brace initially – but now just the collar). I started off with POTS, where my heartrate went up substantially upon standing but, over time this has developed into my blood pressure going up instead. The post below gives a possible explanation:-

http://prettyill.com/forums/viewthread/1715/#5244

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