Hi Sarah, thanks and I totally understand your frustration. I could talk for hours about the attitude of some doctors. I have never forgiven a consultant I saw many years ago who couldn’t find out what was wrong with me so decided I must have an eating disorder because I was thin and he basically told me to pull my socks up. So in his opinion it was my fault I was ill. I always eat well but at that age I didn’t put on weight and neither did food give me energy. I found out later that I am gluten intolerant and wasn’t absorbing food properly.
I am sorry to hear that the specialist wasn’t more helpful. There are some doctors on that list in Ashford, Kent and if I get the chance to get a referral I hope to go there as it’s less hassle than going to London which we have to do quite often for our son.
I would like to get a copy of Dr Diana’s book but as far as I can see it is just for download at the moment. Have you read it? It would be good to have a hard copy to lend to my doctor if the information proves relevant to me.
You should be really proud of yourself for finding out what is wrong with you and pushing for recognition and treatment. It is so unfair to have to fight the system on top of dealing with chronic illness.
Best wishes, Anna. Xxxx