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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: POTS – head and neck pain UK

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › POTS – head and neck pain UK › Reply To: POTS – head and neck pain UK

October 29, 2014 at 3:54 pm #5091
Sarah J
Participant

Hi Anna,

I am sorry to hear you are also suffering from bad headaches. I hear many people are wrongly diagnosed with things like ME or CFS instead of POTS. They said for ages I had CFS, turned out it wasn’t true. It was only through my own research that I found out what POTS was and went private to go get tested for it and for sure it was POTS.

Unfortunately the GPs can be awful, even now I am diagnosed my GP isn’t understanding. I know head and neck pain is common in POTS but I don’t think to the extent we have, but I am still new to it all so I am not totally sure. I have only been diagnosed for about 9 weeks but been unwell for about 19 months. Dr’s can get really arsey when you research stuff yourself and try to tell them their job, I was telling them for 6 months to test me for POTS, but they said there was no way it was that. Hence why I paid for a private test, so glad I did. I am now back on NHS though as don’t want to keep paying out when I shouldn’t have to.

I really hope all goes well for you when you see the cardiologist, you’re heading in the right direction now. Fingers crossed for you.

Sarah

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