Hi Anna,
I am sorry to hear you are also suffering from bad headaches. I hear many people are wrongly diagnosed with things like ME or CFS instead of POTS. They said for ages I had CFS, turned out it wasn’t true. It was only through my own research that I found out what POTS was and went private to go get tested for it and for sure it was POTS.
Unfortunately the GPs can be awful, even now I am diagnosed my GP isn’t understanding. I know head and neck pain is common in POTS but I don’t think to the extent we have, but I am still new to it all so I am not totally sure. I have only been diagnosed for about 9 weeks but been unwell for about 19 months. Dr’s can get really arsey when you research stuff yourself and try to tell them their job, I was telling them for 6 months to test me for POTS, but they said there was no way it was that. Hence why I paid for a private test, so glad I did. I am now back on NHS though as don’t want to keep paying out when I shouldn’t have to.
I really hope all goes well for you when you see the cardiologist, you’re heading in the right direction now. Fingers crossed for you.
Sarah