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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: POTS – head and neck pain UK

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › POTS – head and neck pain UK › Reply To: POTS – head and neck pain UK

October 25, 2014 at 8:24 am #5080
Barbara
Participant

Yes I was a hairdresser so it involved a lot of looking down, had done it for 10 years.

The headaches that are relived when laying down are the back of head and neck pain headaches.

I suspect that those types of headache/neck-ache are caused by a restriction of CerebroSpinal Fluid (CSF) at the junction of the head and neck. A head/neck MRI would highlight this BUT don’t necessarily accept the radiologists report if it comes back ‘normal’ in this area.

What they are looking for is something called Chiari Malformation (Chiari 1, or CM1), which is where the cerebellum (hind brain) herniates through the hole in the bottom of your skull and down the spinal opening, by at least 5mm. Many of us on here have a much less than 5mm herniation and yet show very similar symptoms. A further explanation of the Chiari terminology, if you’re interested, is at:-

http://prettyill.com/forums/viewthread/712/P15/#3988

Many of the medical signs are very subtle and easily missed in the normal medical setting. I also show a copy of my MRI anotated with many of the things they should be looking for at:-

http://prettyill.com/forums/viewthread/712/

Barbara
(UK)

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