Hi Sarah, I have neck pain and headaches most days. The headaches can start at the base of my skull and go into my eyes, temples and down my neck, sometimes involving my shoulders. I was diagnosed with M.E as a teenager but now I am waiting to see a cardiologist because my heart rate goes up high when I stand up and maybe I have Pots instead.
Pain killers don’t help me. Lying down with something warm round my neck helps a little. It is miserable to live like this and I feel I have been abandoned for so many years with no help from GPs and also dealing with people just assuming I am lazy or crazy. I hope to get some help when I see the cardiologist in December.
I only heard about pots recently and my symptoms fit that more than M.E. I would also like to know more about the pain and if it is normal with pots. I hope you get the help you need and that they listen to you. It is difficult to deal with NHS doctors especially if you have researched for yourself it can put their backs up.
Best wishes, Anna.