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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: POTS – head and neck pain UK

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › POTS – head and neck pain UK › Reply To: POTS – head and neck pain UK

October 23, 2014 at 12:38 pm #5069
Barbara
Participant

Do you know what triggered your POTS ? Have you ever had a head or neck injury for example ? see my post at:-

http://prettyill.com/forums/viewthread/48/P60/#1769

Have you noticed any particular positions, tasks, or preceding events that trigger the headaches ? Are you hypermobile ? If you can get to the root cause of your POTS, you have a better chance of dealing with it more effectively. If your joints are hypermobile, for instance, you may be suffering from slight ‘cranio-cervical instability’ (CCI). At the back-end of this one, I mention the Philadelphia collar, CCI and why you should avoid flexion:-

http://prettyill.com/forums/viewthread/464/#2429

Can you describe your headaches – where on your head, type of pain/discomfort, how long it lasts, if anything relieves it ? You may have a few types, I certainly did. Have you had a brain MRI by any chance ?
Regards
Barbara
(UK)