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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Update to previous post

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Update to previous post › Reply To: Update to previous post

December 3, 2014 at 11:07 pm #5131
Barbara
Participant

One more thing, when you say your IST has completely disappeared, am I right to assume that’s Intermittent Sinus Tachycardia ?

Dr Diana’s theory (particularly the Diamox) has brought me much relief, so I’m especially grateful too. Also, more good news is, that once brain structures revert back to their original position, shape and state, more benefits can follow.

I do appreciate the difficulties with guaging the right amount of Diamox though, taking too high a dose caused me to have ‘hand contractions’ in 3 fingers but reducing the dose has just about got rid of these now. Regarding my original symptoms, I can still tell if I forget to take my ‘half a pill’, so I’m not quite ready to wean right off it just yet but I’m getting there.
Barbara
(UK)

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This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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