NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Update to previous post › Reply To: Update to previous post
Awesome news, Jessica! Your case is (amazingly) not atypical, yet this presentation is often misdiagnosed (and many patients undergo some likely unnecessary wicked neurosurgeries — yikes). We are all SO HAPPY that relieving your ICP with Diamox is providing so much relief. I hope your doctors give you lots of control of fiddling with your dose — it took me about a year to settle on a dose. A few years later, I was able to go off of it. We’d all be grateful to you if you could share your story (social media has some good outreach) — so many folks are suffering needlessly… 🙁 It sounds like you are headed in the right direction, though! (and yes, Barb is great, isn’t she?) Big hug, Dr. D