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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Ongoing neck problems with normal mri

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Ongoing neck problems with normal mri › Reply To: Ongoing neck problems with normal mri

February 16, 2015 at 6:33 pm #5308
Barbara
Participant

No probs Sean,
I would be asking them outright what the white dot is, I’ve looked at many many MRI’s and not seen anything that looked like that, as an ‘artifact’, before. Looking at your MRI, do you have a degree of Scoliosis ?

When you have the Upright MRI, I would suggest they take:-
one in neutral,
one with the head in in flexion
one with the head in extension

also, before they start, ask them to assess you according to method described in the following paper (it’s the most comprehensive method I’ve come across, to identify EDS type problems):-

Dr._Francomanos_article_CCI.pdf

If you’re in England:-

See if your GP will refer you to a Neuro-opthalmologist to investigate the eye discomfort, they may see medical signs in the eye, of raised intracranial pressure, which would probably be treatable with Diamox.

Also ask your Neuro if he will refer you on the NHS for a Cine MRI, to check your CSF flow, at the craniocervical junction. This will show if there is any interference or interruption in the CSF flow between your head and neck.

Did you look into the Magnesium deficiency issue because taking certain painkillers repeatedly adds to the deficiency. In the form of Epsom Salt baths, it can ease muscle pain, relieve headaches and aid sleep too. If you haven’t the energy for a bath, try it in a simple foot soak, apparently that works too. Decades ago, when things weren’t complicated by endless pharmacological choices, they used Magnesium to reduce intra-cranial pressure, so it’s well worth looking into.
Barbara
(UK)

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