I remember that feeling, hurt one way when you move, hurt another way when you don’t!
Trouble is, a person can have even a full blown Chiari 1 Malformation (i.e. herniated celebellar tonsils of 5mm or more) and still not have any symptoms, so you can understand, why the medical fraternity see a Chiari 0 and NOT appreciate it’s implications.
I think, there are two anatomical factors at play, which trigger the condition that many of us on here suffer from:-
1. Low-lying cerebellar tonsils (sometimes called Chiari 0), which could be congenital, or caused by something that makes the brain swell (or shift) – i.e. trauma, virus, infection, or something that increases intracranial pressure.
2. Cranio-cervical instability, again a person may just be hypermobile at the cranio-cervical junction (CCJ) or a triggering factor could be head and neck trauma (as in my case)
So you can have Chiari without any symptoms, or you can have Hypermobility (or EDS) without any symptoms BUT, when you have one and then you acquire the other, the trouble begins! This event, in itself, could trigger the onset of the progression of symptoms (many caused by brainstem aggravation or compression). This is further aggravated, if you have a ‘leaning back peg-bone’ in your neck, known as a Retroflexed Odontoid, which I see you have.
A medical sign of instability at the CCJ is a ‘pannus’ which builds up naturally, this is a pad at the back of the odontoid peg, to help try and protect the brainstem from further insult. You seem to have one of these showing on your scan, which to me would suggest you have instabilty there.
Your C4 looks well eroded, like it’s affected by Schmorl’s nodes. Regarding the white dot, if it was chipped bone, it would be the same colour as the bone shows on the MRI. If it was a syrinx, it would be down the central portion and would be the same dark shade as the cerebro-spinal fluid is in this MRI. I was told by a neuro-radiologist, that the white is usually of a ‘fatty’ type nature, so make of that what you will, maybe a small cyst or something like that, I don’t know it’s not for me to say.
Don’t be phased by your neuro being annoyed, it’s a way of stopping you from being inquisitive. Basically, whether it’s from the public purse or from your purse, they are being paid to do a job and should be doing just that – i.e. alleviating your worries, finding out what’s wrong with you and treating you to put it right. If just doing their job is making them angry, then the problem is theirs.
It’s a case of ‘know thine enemy’ – once you know exactly what’s going wrong in your body, you have a better chance of putting it right.
I wish you ‘all the best’