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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: What could be wrong?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › What could be wrong? › Reply To: What could be wrong?

December 5, 2014 at 4:12 pm #5152
Violet
Participant

I also have a retroflexed odontoid with a lot of pannus (if I’m interpreting my brain MRI correctly). I have not looked at my c-spine or rest of my spine yet.

(Barbara, I realized today that the MRI image I sent you was not the middle slice. The green circle part you saw seems to be pannus, but the odontoid is only visible in the middle slice.)

I read other posts of Barbara’s about using the hard collar instead of soft. I am feeling like the hard collar could be worse on my out of place neck. I believe when my head is in its usual position, my odontoid and cervical vertebrae are pressing less on my dura. If I use a collar to reposition my head into normal position, it would be pressing more.

Update… decided to order a Philadelphia and see how it feels. I know most others will be too soft.

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