• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: What could be wrong?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › What could be wrong? › Reply To: What could be wrong?

December 4, 2014 at 11:12 am #5139
Barbara
Participant

Hi Violet,
No problem, glad to be of help, just wish I’d more time and energy to dedicate to it!

The only real thing a diagnosis can do, is make you more informed about the nature of your condition, thus making you more knowledgable about how best to manage it (know thine enemy!)

If it is craniocervical instability (CCI) then it is CRUCIAL that you restrict any action that is going to apply subtle pressure on your brain and brainstem – or your future could be very bleak! The trouble is, unlike any other area in your body, if you are subtly damaging your brain/brainstem, you feel no sudden pain at the time, just maybe enhanced dysfunction symptoms (i.e. tachycardia, or numbness/tingling, or lots of other things) at the time, or at a later time. In my book, it’s in your best interests to treat it as such – until proven otherwise, that way you have everything to gain and nothing to lose. If you suspect it, in my experience a Philadelphia collar is best, as a soft collar does not support the head sufficiently and can be worse than not wearing anything.

For anyone interested in The Chiari Institute method, that’s the Bolognese/Milhorat/Francomano method for determining craniocervical instability, which I mentioned earlier, here’s the paper:

Dr._Francomanos_article_CCI.pdf

Regards
Barbara
(UK)

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020