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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: What could be wrong?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › What could be wrong? › Reply To: What could be wrong?

January 15, 2015 at 6:17 pm #5228
Barbara
Participant

If it is craniocervical instability (CCI) then it is CRUCIAL that you restrict any action that is going to apply subtle pressure on your brain and brainstem – or your future could be very bleak!

Can I wear a Philadelphia collar with my existing issues? My neck curves the wrong way and the vertebrae don’t line up as they should. A cervical vertebrae is getting close to the spinal cord. This is a hard collar, so won’t it be trying to force my neck into the normal position, which is very unnatural for me? Or will it conform somewhat and give me support for my neck’s usual position? I really want the support. Just checking so I get a collar that works.

Difficult one this. I wouldn’t want to make your condition any worse. I can only tell you of the benefits the philadelphia collar brought me. I had the ‘loss of lordosis’ amongst other things and, I have to report, that my neck alignment was much better after wearing this collar for a while, as a subsequent x-ray showed great improvement.
Regards
Barbara
(UK)

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