NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › The Driscoll Theory – book now available! › Reply To: The Driscoll Theory – book now available!
Dr. Driscoll–I couldn’t find any other way to contact you with this matter–no answers to the queries I sent to the address I received your book from. I ordered your book in the new non-printable PDF format. Like others, I was disappointed that I could not print out a page here and there to share with my doctor, but I at least wanted to read the book. The link said I had only 36 hours to download (or 4 attempts). I had hoped to download it to my kindle, but could not make that happen. So I settled for downloading it to my desktop–started reading it, but then closed it for a bathroom break. When I reopened the PDF, it was entirely blank! Nothing I did would bring back the content. So I downloaded it again and tried various ways of making sure I had “saved” it in my downloads…..but still, as soon as I closed it, it turned into a blank PDF. (This has never happened with the many other downloads I have done.) Finally I downloaded it again and stayed up all night reading it, because I knew I would have to close it eventually to use my computer for other necessary things. Sure enough, as soon as I closed it, it went blank again–I now have 3 totally blank PDFs on my desktop….and the 36 hour window for using the link has passed.
You said elsewhere that doctors would not read this book, but I think there are some who are really interested in ongoing EDS research. But how can I even present the idea to my doctor without some of the details of your protocol? I feel like I have no way to try your theory without access to the details of how and why, etc. I have had past success with printing out informative EDS articles, charts, testimonials, etc. for my doctors….but on this I have no way to accomplish that. I can try to tell her about it….I certainly have very definite symptoms that would coincide with your theory….but my memory is useless for trying to recall pharmaceutical names, dosages, side effects, etc. It is very frustrating to have paid $20 for a book and not actually have the book.
I am one of those who has been totally stripped clean by EDS. It has taken away my ability to hold a job, drained all my savings and resources, and left me dependent on a small disability pension ($700 per month) and whatever Medicaid will cover. $20 is a lot in my circumstances and it was a big decision to spend that on a 150pp. “nonprintable” book–but I thought I would at least get to keep a copy on my computer to refer to. I really think you are onto something important with your theory….I have had a large circumference head all my life, and in addition to having ALL the other symptoms you listed, I have had a lot of sudden gushes of clear liquid completely soaking my shirt and sheets. I would really like to try the medication protocol you recommend….these continual disabling headaches with severe vomiting/dehydration have repeatedly sent me to the hospital, but no one has found a way to actually treat them….nor the wildly shifting spikes of my orthostatic hypertension. I think my doctors are overwhelmed and ready to try almost anything….and a success would certainly help support your theory….but I need access to the book!
Can you please help this fellow sufferer? I will be happy to forward my receipt to you.