This was sent to a friend of mine in a diff state who knows an ID doctor. Yeah, I’m desperate! I compiled this as best I could. There could be other issues but unless there is an H or L, I am too lay to pick up on it. This was a lot of work for me and took a long time to complete. I do hope it makes sense. It is a completely lay interpretation and I feel like crap ‘to boot’.
Ok, here goes.
On a CBC there are 5 catagories for red blood cells
On a CBC there are 2 catagories for white blood cells
Over the last, approx 3 years, approx quarterly, blood has been taken and CBC has been performed.
The eosinophils (aka white blood cells) are elevated in both catagories each and every time, sometimes as much as 3x the max normal guideline.
The red blood cells (aka MCV, MCH, MCHC, MPV) are elevated in 3-4 of the catagories each time over these past years, sometimes the elevations are substantial and nearly double the max normal guidelines.
Pathologist reports have been received back on the one or two occasions that the bloodwork has gone to RML for additional tests performed. Pathologist statements: 279.9 unspecified disorder of immune mechanism, evaluate for possible toxicity, evaluate for megaloblastic anemia, evaluate for macrocytic anemia. This is just what a ‘lay’ person is able to read. Oh, and BTW, none of the pathologist suggestions have ever been followed or even mentioned. Instead, the approach has been to pathologize the patient and dismiss the massive debilitating symptoms and gross decline of health as being somehow fabricated or exaggerated.
TSH fluctuates greatly (within short periods of time) and is either very near low or low OR very near high or high.
Now, to include a few of findings within the more extensive bloodwork done nearly 2 years ago (which, again, have never had any follow up):
HIGH: bun-m, creatinine-m, total protein-m, albumin, ast-m, hdl – all on same sheet and drawn in Oct of 2010. Never addressed. CBC from Oct of 2010: borderline high MCH and MCHC. High MPV. Low NE%. Eocinophils 13.02. Eosinophils .781. TSH 3.03 on Oct of 2010.
TSH 4.635 on Jan of 2011. Accuse me of drinking a glass of milk with medication – not true.
April 11, 2011, TSH is .612. CBC is High MCV and MCH. Low Neut%. High Lymph%. Eosinophils High 11.2. Baso is LOW = 0 or less.
April 27 = ASO is HIGH = 319, more than double maximum.
April 25, 2012 TSH is .313 = LOW.
The pathologist recommendations for one of the abovementioned April 2011 results was: Possible toxicity: Greater than 150 ng/mL. Maybe just jibberish? I have no idea. It’s just a plethora of guidelines about liver, vit D, US National Osteoporosis, etc etc etc. Anyway….
OH CRAP, NOW THAT I LOOK AT THE FOLATE (from 4/27), I WAS EXCEEDING THE MAXIMUM OF 24, espressed as: >24.0 NG/ML. The doctor I saw gave me supplemental folate Rx to take and told me that I was low! Here are the eval notes: evaluate megaloblastic and macrocytic anemia; evaluate alcoholic (WHICH I HAVE NOT HAD A DRINK, EVEN SOCIALLY, IN YEARS – I feel too damn sick to risk additional disability). EVALUATE CAUSE OF INCREASE IN SERUM HOMOCYSTEINE LEVEL. B12 is also high at 1112.
We’re still on the April 25, now CBC: High: HGB, HCT, MCV, MCH. EOS% 9.1 (which is still High). Baso% 1.4 = high.
On to September of 2011: TSH Low: 2.83. Free T3 toward low. CBC: High MCV and MCH. EO% is High. EOS# is High.
On to February of 2012: CBC: High: MCV and MCH. LY% = Low. EO% is High. EO# is High. B12 was checked and is 1363 = High. Folate is >24 (which, I believe exceeds max highest level). Well, here we go again: evaluate megaloblastic anemia and macrocytic anemia. EVALUATE CAUSE OF INCREASE IN SERUM HOMOCYSTEINE LEVEL. The other stuff doesn’t have H for high or L for low and has no reference numbers for the ‘lay person’ to investigate (as crappy health permits, of course).
April 2012: TSH is wnl but on the low side, .549 . CBC: HCT is low. MCH is High. RDW is Low. MPV is High. EO% is High. EO# is High.
November 2012: TSH is .365 . CBC: High: MCH and MCHC. PLT CT – CN is High. EO% is High. EO# is High.
There we go. You’ll probably have to forward the email. Thank God that I now have it in writing since the administrator of the clinic told me I should prepare a report if I wanted my bloodwork to be reviewed, huh.
Let me know what bloodwork might benefit me next go round so that I can request it. I get 20 minutes 2 or 3 times per year with PCP and have to mentally stagger around trying to research enough to advocate for my diagnostics. I have to do bloodwork again in 6-8 weeks. Abovementioned diagnostics haven’t netted any real maintenance or tx plan. Might as well at least do proper diagnostics since needles make me so freakin sick (on top of already super sick) AND my veins lack proper integrity.
I may have more labs but this is what I am finding in the notebook that I now feel the need to keep (which has backfired by netting me comments such as; “You’ve been overdiagnosed” and hypochondraic-ish comments (which I cannot specifically remember).