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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: BLOOD REGISTRY!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › BLOOD REGISTRY! › Reply To: BLOOD REGISTRY!

September 7, 2012 at 2:42 pm #2882
Barbara
Participant

Just thought I’d tell you that I have been diagnosed with EDS, though I am not obviously hypermobile and the Tilt Table Test had no real affect on me, except a bit of dizziness, if I recall (it was 8 years ago! and we had been telling scary stories in the period where I was laying flat, so that probably affected the test). I was diagnosed with POTS based on the heartrate raise on standing, which on the day they tested me was an increase of 55 BPM first thing on the morning, lesser but still significant as the day progressed. Also I had an inappropriate BP/HR response to exercise.

Nowadays, my heartrate no longer fits the POTS criteria when standing but I have a raise in BP instead. It seems the longer I’m upright, the higher it goes. Needless to say, I soon start to feel ill when upright, so sit down!
Regards
Barbara
(UK)

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