Hi, my neuro doesn’t believe I have EDS (I am not hypermobile) and I have never had a tilt table test (the test they were going to do didn’t take into account the hyper form of pots which is what my neuro and the electrophys. card said I have as I have adrenal surges and my bp as well as my heart rate increases upon standing.) The tilt table test that was available they told me the diagnosis of pots would be if I fainted when the table was raised, but I had to faint to get a diagnosis. I have never fainted….just get shaky and bp and heart rate goes up. The copay to have the test was ridiculous to risk the chance of them saying “sorry, you didn’t faint so…”
So do I qualify for the bloodwork and testing?
Hi AdlersMommy, I’m afraid the blood registry kind of came and went. We can still order it at no charge for those patients who are on Medicare Part B. If that’s you, please holler! 🙂