Thanks Barbara. It’s hard to know for sure what’s causing what. When my geneticist watched the video he suspected Dysautonomia for the instances when he couldn’t get up from a lying down position. Dysautonomia suspected mast cells were the underlying cause. Other times the pain is just so severe that he can’t bear weight on his legs and is unable to walk. If he attempts he just collapses. Fortunately since removing dairy from his diet the only times he gets pain now is if he comes in contact with a trigger (which can’t always be avoided). The flares usually last a day or two and we manage with benadryl. We’re now working with a mast cell doc who is hopeful that Gastrocom will eliminate even these occasional flare ups.