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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: EDS, mild optic swelling and brain lesions

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › EDS, mild optic swelling and brain lesions › Reply To: EDS, mild optic swelling and brain lesions

February 8, 2019 at 7:17 pm #6339
MJ
Participant

Hello. I am 48 years old and I too have just received results of WMH: “several small foci of high signal seen on the FLAIR sequence in the supra-tentorial white matter”. The conclusion on the report Is: “Minor nonspecific white matter signal changes in the supratentorial brain. These most likely represent evidence of early micro-angiopathic disease. Differential diagnosis is broad and would include post inflammatory and idiopathic causes of demyelination as well as small vessel vasculitis. Follow-up may be helpful to assess temporal change”.
I too am having increased dizziness and gastro problems [in addition to cognitive and memory decline]. I have the report, but I haven’t actually met with my neurologist to discuss it [she ordered the MRA]. If it is Early Micro-Angiopathic Disease, I would be inclined to think that I may have Vascular EDS, as I am only 48 years old, so it is early-onset. I do have many other signs of Vascular EDS, but I am diagnosed with Classical EDS. Mine is considered mild, or early stages of white matter disease [another name for micro-angiopathic disease]. This does make sense, as I have been telling every specialist I have seen over the decades that not enough blood is getting to my head and I could actually prove it. Anyway, not sure if this helps or not, but it is interesting that you also have WMH. Also, I have a deviated septum and enlarged turbinates that at times completely block the left airway and partially block the right airway, leaving me not being able to breathe through my nose. This causes systemic-wide inflammation and a cascade of events whenever I am in a flare-up – but the doctors are not taking me seriously when I tell them my airway is blocked and I am not getting enough oxygen. Maybe now with Early Micro-angiopathic Disease, they will finally believe me.

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