Not a great deal of action is produced here these days, yet Dr. Diana endeavor’s to fly in and give recommendations. She opened the POTSCARE focus in Texas and is helping individuals recover their lives. Look at that site as well. Heaps of good information. Likewise, you should need to join two or three the facebook EDS pages. A few great ones with heaps of individuals exceptionally experienced in the trio of EDS, Dysautonomia, and MCAS. Good fortunes to you.