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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: EDS and hormones – am I damaging myself?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › EDS and hormones – am I damaging myself? › Reply To: EDS and hormones – am I damaging myself?

July 14, 2013 at 11:21 pm #3902
Dr. Diana
Keymaster

Hi Corvus, Doy! I got it now! 😉 Honestly, this is so tough, since your body and hormones are going through so many changes, it is tough to tell what is due to hormonal shifts, and what is due to possible EDS and it sure sounds like you have POTS (and/or dysautonomia). I’m so sorry you are having to deal with all of this at a time when your body (and mind, likely) are going through so much. 🙁 As far as the “blood-letting” (leaches, anyone?) I don’t think any of us could really offer much in the way of advice — certainly not without a close look at your complete panel of blood work. I do, however, think your instinct is right in that POTS is usually worsened with less blood. But your doctor should have all the info they need to evaluate your panel to see if you may have too many RBC’s or another type of cell. That is a complicated condition to deal with, but I’m not certain that is what is going on with you! Sigh… I would recommend that you keep a diary of your BP/heart rate through out the day to give your doctor. Be sure to note your position (supine, sitting, etc) when you take the readings. That may give them some important info in figuring out your care. BTW, if you have any articles about testosterone causing changes in connective tissue, I’d be VERY interested in those! Hang in, my friend…

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