Please read Dr. Diana’s book if possible. It explains so much. You might be experiencing autonomic dysfunction (some type of dysautonomia). The optic swelling could be caused by high intracranial pressure. Diamox is the suggested drug for this. Search this forum for this and you’ll get a lot of good information. Not a lot of activity is generated here nowadays, but Dr. Diana try’s to pop in and give suggestions. She opened the POTSCARE center in Texas and is helping people get their lives back. Check out that website too. Lots of good info. Also, you might want to join a couple of the facebook EDS pages. A couple of really good ones with loads of people very experienced in the trio of EDS, Dysautonomia & MCAS. Good luck to you. Hope you can start feeling better soon.