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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR › Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR

July 22, 2012 at 8:31 pm #2654
Barbara
Participant

Hi,
I bet there isn’t one person on this website that hasn’t had trouble with doctors!! It’s a very odd thing, all this reluctance, it really doesn’t make sense.

I’d love to have an MRV but firstly I am waiting for the geneticist, then the immunologist, they don’t seem to like sending you to more than one specialist at a time in this country (UK). I suppose it’s all down to the way the service is structured and costs. To me it’s false economy, they ought to have all the specialists at one centre (like they did 50 years ago) and you go there for a day (or maybe more if your condition warrants) you get tested, assessed and treated and before you know it, you’re back at work and supporting the economy again – simples!!

Also in this country, they only acknowledge CCSVI if you have MS, which I don’t have.
Regards
Barbara
(UK)

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