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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR › Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR

July 21, 2012 at 3:25 pm #2649
MJ
Participant

Hi MJ,
Yes, you’re right, basically the body will try any means possible to keep the blood flowing to the brain and if it doesn’t raise the heart rate, it will raise the blood pressure instead.

I see a lot about HypOtension, where people’s BP drops on standing but not much about HypERtension where BP raises on standing. Has anyone else’s POTS developed into NMH (Neurally Mediated HypERtension)?

I have both increased HR and increased BP on standing. It didn’t develop into this – it’s been like that from the start. Funny you should ask about hypertension on standing. I am curious if having CCSVI is related to high blood pressure on standing. For those with CCSVI (and dysautonomia), does your BP go up when you stand? I think Dr. D. said in a video that hers goes up on standing, and she has CCSVI. I believe I have CCSVI – but no testing yet – and my BP goes up on standing. Or, perhaps it has to do with having a CCI? Maybe if we do a survey, we could figure out what causes BP to go up on standing lol! Or, maybe Dr. Diana already knows. For those with high blood pressure on standing, can you list your symptoms/diagnoses/anything relevant (e.g. dysautomia, POTS, CCI, head/neck injury, etc.)?

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