NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR › Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR
I’ve been dealing with POTS for 8 months now (mine started abruptly after an episode of vertigo). When my GP did a Poor Man’s tilt test in January in his office, my heart jumped 40 bits when standing (he did it with an EKG machine hooked up). I’ve been taking a beta blocker and Desmopresin to control symptoms, plus Getorade. My tachycardia and upright time got better, however dizziness only seems to get worse. I went to a cardiologist in hopes for better treatment for POTS, and had a formal TTT at the hospital. Guess what… it came back normal. I can’t make any sense out of it… I still feel tachy (not all the time like in the beginning) and very very dizzy. Now my cardiologist wants me to stop beta blocker and the hospital made me to sign a form that I will. So frustrating, I feel like I’m back to square one. I’m totally confused.. One thing I know is that I’m not well. I guess my next option is a neurologist to do a full autonomic nervous system testing to look for dysautonomia vs. just POTS. It’s just so hard to find a good neurologist.
I stopped Propranalol and I’m back in bed today 🙁