• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR › Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR

July 20, 2012 at 12:48 pm #2646
Ht888
Participant

I’ve been dealing with POTS for 8 months now (mine started abruptly after an episode of vertigo). When my GP did a Poor Man’s tilt test in January in his office, my heart jumped 40 bits when standing (he did it with an EKG machine hooked up). I’ve been taking a beta blocker and Desmopresin to control symptoms, plus Getorade. My tachycardia and upright time got better, however dizziness only seems to get worse. I went to a cardiologist in hopes for better treatment for POTS, and had a formal TTT at the hospital. Guess what… it came back normal. I can’t make any sense out of it… I still feel tachy (not all the time like in the beginning) and very very dizzy. Now my cardiologist wants me to stop beta blocker and the hospital made me to sign a form that I will. So frustrating, I feel like I’m back to square one. I’m totally confused.. One thing I know is that I’m not well. I guess my next option is a neurologist to do a full autonomic nervous system testing to look for dysautonomia vs. just POTS. It’s just so hard to find a good neurologist.

I stopped Propranalol and I’m back in bed today 🙁

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020