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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR › Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR

July 19, 2012 at 7:52 am #2641
MJ
Participant

I think you should take some of the handouts from this web site to your doctor. You could also ask him to read The Driscoll Theory (I am about to order the paperback for docs to read) – which will cover Diamox, etc.

Also, I can TOTALLY relate to what you are calling a ‘short circuit’. I sit around and can’t really do much, thinking of all the things I’d like to do – like clean the bathroom, unload the dishwasher, vaccuum, etc.. And not very often, but once in a blue moon, I am surged with energy. My mind is quick (no brain fog), I am totally focussed and it goes something like this…at a million miles per hour, so read quickly. “Okay, what do I do first? Vaccuum, bath the dog, dust, load of laundry, kitchen, uh oh – slowing down a bit, better hurry…clean bathroom…uh oh it’s over.” At least I got those things done in such a short amount of time but then back to brain fog, slow motion, no energy, don’t want to do anything. I wonder if this is what Dr. Diana is referring to when she talks about the bipolar appearance. It’s like highs and lows of functioning (mostly lows for me).

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