• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR › Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR

July 20, 2012 at 7:13 pm #2647
Barbara
Participant

Your blood pressure can also increase with POTS. That is the case for me. Mine increased by 34/32 on standing. You may want to video tape your results; my doctor did not believe me when I told her I went from 60 to 120’s on standing. Once they get it in their head that you’re a hypochondriac b/c of all the weird symptoms – game over. It was my ND (Naturopathic Doctor) that took my pulse and BP lying down and standing and confirmed the POTS. I just haven’t had any testing and the MD’s roll their eyes when I mention an ND diagnosed me.

Hi MJ,
Yes, you’re right, basically the body will try any means possible to keep the blood flowing to the brain and if it doesn’t raise the heart rate, it will raise the blood pressure instead.

Strange that I forgot to mention that the blood pressure could also ‘go up’ because that’s actually what happens to me!! Over the almost 5 years, since I’ve been fitted with a Philadelphia collar 24/7, my POTS seems to have mutated to NMH (Neurally Mediated HypERtension). In that, my body now compensates for ‘lack of blood to the brain’ by raising my blood pressure (abnormally) when I stand up.

For instance, after writing about the Poor Man’s Tilt Test yesterday, today I thought I’d carry one out myself (just for the record) with help. The results were:

After laying for 15 mins 137/84 HR 73
Sitting for 15 mins 143/90 HR 68
Taken immediately upon standing 165/101 (erm, not good!) HR 80
After standing 3 mins 167/103 (way too high) HR 77
After standing another 3 mins 163/100 HR 78
After standing another 3 mins 158/103 HR 84

Maybe the fact that I’d just had a shower and was ‘whacked’ had something to do with my high BP. Although I sit up to sleep and sit up to do almost everything, I do try and stand up many, many times a day for about 30 seconds or so, to make sure that I don’t loose my ability to do so but I don’t stay upright too long, as I start to sweat and feel unwell.

If you notice my heart-rate only jumped 12 points from sitting to standing, whereas to qualify for POTS it has to raise by 30 points (mine used to jump by at least 30 points, sitting to standing and when I first got up in the morning, it was commonplace to jump 50 points or more, certainly in 2004 when I was diagnosed!)

I see a lot about HypOtension, where people’s BP drops on standing but not much about HypERtension where BP raises on standing. Has anyone else’s POTS developed into NMH (Neurally Mediated HypERtension)?
Regards
Barbara
(UK)
—————————————————————————————————————————————–
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium), CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies!

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020