NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › Beighton says what?? Am I Hypermokidding me? › Reply To: Beighton says what?? Am I Hypermokidding me?
Thanks for the laugh at the end!
You don’t mention the Brighton Scale (or Brighton Criteria, as it’s also known), which I think is the most recent measure, as it includes autonomic involvement. I don’t have stretchy skin (although it does break down easy) and have hardly any hypermobility (only knees and ankles), yet I was diagnosed EDS III, in 2010 using the Brighton Scale. I had already been assessed a couple of years previous, using the old Beighton scale, which looks at hypermobility only and was told I didn’t have it.
I think the Brighton Scale says if you have 1 of the major criteria, one of which can be arthralgia (pain in the joints) for >3 months PLUS 2 minor criteria, so if you also have ‘autonomic’ involvement and yet didn’t score too high on the Beighton scale, you may still be diagnosed positive using this new Brighton Scale, see if your consultant is aware of it. They are saying that Joint Hypermobilty Syndrome is indistinguishable from Ehlers-Danlos Syndrome, so it could be the same thing?
Copy and paste this link to see an article on the Department of Works and Pensions website which includes details of The Brighton Scale:
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium), CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies!