• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR › Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR

July 19, 2012 at 7:13 pm #2643
Barbara
Participant

Hi ‘Give my daughter the shot’,
I would carry out a ‘Poor Man’s Tilt Test’ at home and take the results with you. It’s 8 years ago since I learned about this, so things might have changed a little, but if I remember correctly, it goes something like this:

Quick ‘Poor Man’s Tilt Test’.
You’ll need:
Somewhere to lay down and a wall very closeby to lean against
BP pressure cuff
Pen & Paper
Someone to push the start button, write the results & symptoms and to help you
Procedure:
Breath normal and relax, do not talk (except to summon help, if you need it)
1) Lie still and rest for 15 minutes minutes, then take your blood pressure and pulse.
2) Sit up for 15 minutes, then take your blood pressure and pulse.
3) Stand up (against the wall), then take your blood pressure and pulse.
4) Stand quiet and still for 3 minutes, take your blood pressure and pulse.
5) Stand quiet and still for another 3 minutes take your blood pressure and pulse.
6) Stand quiet and still for another 3 minutes take your blood pressure and pulse.

At point 3, if your pulse rises at least 30 bpm (beats per minute), you can bet you have POTS (Postural Orthostatic Tachycardia Syndrome). For some it might take until point 6.

I believe a 20 point drop in BP shows Orthostatic Intolerance (OI) too.
Regards
Barbara
(UK)

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020