NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR › Reply To: DOCTOR SAYS NO DIAMOX W/O POTS CONFIRMATION, BUT CAN'T GET PAST HALTER MONITOR
Yes, it sounds like you have CCSVI. Are you going to get an MRV? I hope to – I’m just having trouble getting doctors to listen to me!!!
MJ and friends, this is VERY important. Yes, I’ve seen that a lot of us have CCSVI, but if you’ve watched my videos you’ll see that this type of venous problem is systemic in most of us AND treatment with angioplasty provides fleeting, if any, response. It can set us up for thromboses, however (as happened to my son and I). One reason I took my book down, was because people had difficulty separating “CCSVI” from “angioplasty”. I am working on figuring out what is causing venous abnormalities (beyond genetics). A big part of our venous problem is that the veins become to LARGE (angioplasty which dilates veins obviously won’t help that!). I’m getting closer… Meanwhile, I try to stay away from saying “CCSVI”, but substitute venous (and while we’re on it — arteriole) abnormalities. Cool?