My pain management doctor is okay. He at least knows what EDS is and has several other patients with EDS. That is a start, right? Lol. He a typical pain management doctor-suspicious of everything. Pain management is a loose term. I have two types of pain, tolerable and intolerable. I don’t remember any more what it feels like to not be in pain, and my tolerable level is someone else’s debilating pain. Everyday is a struggle and I am on two high dose narcotics. They only take the edge off. I am going to have to go on disability. It is a hard thing. I love being a microbiologist and I am good at it. I really love teaching students and doctors. I am in mourning of all the things I like to do, but can’t. I feel like EDS has taken all from me. I really worry for my kids and their future.