I had a thought re: Diamox. I almost feel like we are talking about 2 different medications – one group implies that it is pure poison and another says it is perfectly safe. Anyway, I did a bit of looking about online trying to understand this difference of opinion and found that it seems like a lot of people, who are on Diamox for a variety of conditions, are on large doses – 500, 1,000 or even 3,000 mgs.
For these symptoms and this particular manifestation of high intracranial pressure, we are asking for a low dose – 125 mgs or even 75 mgs. I wonder if the doctors who have refused to let us try Diamox are assuming we want a giant dose? I am planning on trying to get my daughter in to our local neurologist for a ‘second opinion’ (I have posted in detail about our ‘adventures’ in previous posts) and plan on emphasizing the low dose concept if he actually gives me a chance to speak. I really think if I can get a doctor to just look at the info for 2 minutes, he will be on board. But emphasizing the low dose cannot hurt!
Just a thought that may help others in their quest to get answers and help regarding these horrible, debilitating symptoms.