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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Do you feel sick when you lie flat on your back, or have you ever felt "paralyzed"?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Do you feel sick when you lie flat on your back, or have you ever felt "paralyzed"? › Reply To: Do you feel sick when you lie flat on your back, or have you ever felt "paralyzed"?

February 6, 2012 at 9:08 pm #1726
Dr. Diana
Keymaster

When I lie flat on my back, it actually hurts my back, neck and head. I get a lot of pressure in my head and it feels really heavy to pick up. Some mornings I have to pick my head up with my hand or roll over. I always fall asleep on my side but for some weird reason, I always wake up flat on my back with my ankles crossed and my hands folded over my chest. I feel like I am preparing myself for burial or something. My arms do go numb and feel tingly as if they have fallen asleep. Sometimes when I faint, I will feel paralyzed when I first come to and some mornings when I wake up or when I wake up randomly in the middle of the night. I also have a lot of occular pain. It seriously feels like someone is trying to squeeze my eyeballs out of my head from inside my head. My eyes, nose and lips are almost always swollen when I first wake up as well. I have this headache that feels like I had been swimming all night and took water up my nose somehow.

Sarah, I’ll betcha’ you have EDS/POTS, too! Just a feeling I have… ha. Have you had a CBC with diff? Happy to look at it (in about 2 weeks). Your docs should want this to check your kidney/liver function. Let us know?
🙂 Big hug,
Diana

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