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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: What Doctor to Choose?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › What Doctor to Choose? › Reply To: What Doctor to Choose?

September 24, 2011 at 3:24 pm #1497
Dr. Diana
Keymaster

Hi Jaraadri, boy, this is the hardest question to answer! Finding doctors! I went through frustration and agony trying to find someone who would even SEE me, much less TREAT me. I’d get that “deer in the headlights” look from them when I walked in the door. Anybody ever seen that? ha. Basically, if you can find a doctor who is open-minded and wants to help, that’s a good one. A geneticist is important, especially initially. I love Dr. Clair Francomano in Baltimore. So many of us have undiagnosed mast cell disease and THE doctors to see for that are Dr. Castells and Akin in Boston. After you get those doctors squared away, then you “go shopping” for someone to help you with the “fallout” as you need help. Local support groups can help you find good ones, and I know the folks here will help if they can. It is something we all deal with on a regular basis, Hon. At least you know you’re not alone in your quest! Big hug, 🙂

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