Boy, your family sounds exactly like ours! I told my tall, thin, blonde teenage daughter that EDS could be the best, but could be the worst thing that happens to her! (very tongue in cheek – we try to keep a healthy sense of humor about all of this). I’m hoping it’s the best, since we’re making some real headway in treatment, but she still looks like a model. Ditto my son, but he isn’t really into how he looks, and certainly doesn’t care that girls like tall, lean blonde boys! ha. Give him 2 years…
Ah, a sulfur allergy? I may need to google or ask the pharmacist! It’s been so long since I’ve seen someone sensitive to sulfur (no idea why!). Mannitol can be used, but that is by IV, so likely not your first choice! Let me see what I can find out, if you don’t find out first, OK?
Thanks, great question!