Thank you, you are so kind. I can relate to SO MUCH of what you say!!!!!! Wow!
OK, you MUST look at the theory because it sounds like your instincts are right — hyperadrenergic POTS, and it SURE sounds like you have mast cell involvement. It’s looking more and more like the two go hand in hand.
In our family (yes, no one escaped this – except my husband. ha), treating the mast cells and taking off a bit of pressure on our brains has made a HUGE difference — and we’re not even on the prescription mast cell medicine yet (still taking lots of the over the counter Zantac and Zyrtec – ASK YOUR DOCTOR FIRST). But you may want to take a copy of the theory with you. Until I make it easier to find on the site you can get it by going to this URL:
http://bit.ly/moYbIB In Part 2, I tie all of the conditions together.
I’m so glad you’re here. PLEASE keep us posted as to how you are doing. Personally, I’ve been through it ALL, to the point I didn’t think I’d have ANY ability to think the next day. I also tried to explain to the Mayo researchers about how the bipolar presentation/suicide ideation would turn on and off like a light switch, and that it HAD to be a change in brain chemistry. It seemed to fall on deaf ears.
Oh, I had to stop my periods for a while (a couple of years) because I was SO sick during that time. I assume the change in hormones caused vasodilation — our enemy!
Big hug, 🙂