First off i’d like to say hi to everyone as i’m new here.
I deliberately looked on this forum after buying a copy of the Driscoll theory and found by pure accident something that rang a bell.
Since the age of 18 i suffered with what drs thought was some kind of epilepsy (thought to be unrelated to the EDS 111 i was diagnosed with at 32)but all the tests for epilepsy came back negative/inconclusive. I always had this when i was in bed and sleeping on my back. I would wake up, feel like a wave would travel up my body very quickly and then i would be paralised. I would try to shout for help in a total panic but all i could do was make clicking noises as i tried to speak (whitnessed by my partner)and unable to breathe. I would panic to turn on my side somehow thinking that would break the paralisis but never managed it. I would then start to hallucinate either with or without my eyes open (aliens and my partner with pixie ears may seem funny now but at the time it really wasn’t haha). I’m now 43 but haven’t had a problem with it for a few years now. I thought it was something i’d just ‘grown out of’ until i came across it in the book, now i realise it’s probably because i haven’t slept on my back for the same amount amount of time.