I completely understand, Lab-Scientist-Lady!!! Mourning is a journey, and I still struggle with it at times. I’ve decided that if my path has changed, I need to make the best of it, so I decided to throw myself into getting “real” answers instead of “symptomatic help” for me, sure, but mainly for my kids and everyone else suffering. My research indicates that many of our problems are avoidable. I think doctors relied on “genetic defect, therefore you need to live with it” for too long. I pray that my work will make this condition a nuisance — loose joints. That is what it “should be”, right? 😉
I appreciate what you are doing. I have been told several times now that there is nothing you can do about it. I asked my PCP if I should try to see a spinal doctor to help keep my back problems from getting worst? She said why? You can’t doing anything to stop it? I was hoping she could help me create a treatment plan. Instead she told me just to accept it and not to waste my time. What was the first thing you did after your diagnosis?